‘So, Life Wants You Dead’ by Nora Logan: Episode seven
This week’s final episode of the Soho Chance winner’s disability podcast features Ronaé Fagon, cofounder of the sustainable e-commerce platform, SlowCo
Tuesday 24 January 2023 By Soho House
The way we think and talk about disability has to change. This is one of the main messages of the So, Life Wants You Dead podcast by writer and wellbeing advocate, Nora Logan. In 2021, Logan was among the winners of our annual Soho Chance competition, which meant that Soho House was delighted to support her in bringing her creative project to life. So, Life Wants You Dead is ‘the space to have honest, funny and expansive conversations with people who have an illness, disability or chronic condition and who just so happen to be creatives, too.’
The podcast premiered in December 2022, with seven episodes in total being released weekly. Tune in above for the seventh and final episode of the season, detailed below.
Episode seven: Ronaé Fagon on navigating a medical system not set up to cater to a mystery illness
In this episode, Logan talks to Fagon, a sustainability thought leader, illustrator, fashion designer and cofounder of the sustainable e-commerce platform, SlowCo. They talk about Fagon’s experience living with a mystery chronic illness (for which she’s yet to receive a diagnosis), how grinding at a demanding job contributed to burning out in 2018, and what it’s like to navigate the medical system when you don’t have a diagnosis.
Read our interview with Logan here – and follow the podcast on Instagram, TikTok and YouTube. To read a transcription of episode seven, click here.
Scroll down to catch up on previous episodes…
Episode six: Claudia Walder on shame, community and finding new ground after disability
In this episode, Logan talks to Walder, a London-based editor and creative director working within the realms of styling, image direction and journalism. She is also a disability activist, model and the founder of Able Zine, a magazine dedicated to disabled and chronically ill communities, young people and creatives. They talk about Walder’s experience living with myalgic encephalomyelitis, the difficulty of finding appropriate care, her creative outlets, and what led her to creating Able Zine.
Episode five: Matilda Ibini: humour and writing your way through
In this episode, Logan talks to Matilda Ibini, a Nigerian Londoner and award-winning bionic, queer playwright and screenwriter with limb girdle muscular dystrophy. Their work often centres women, disabled people, queer people, and the Black British experience seen through a magical realist lens. They talk about their work as a playwright and screenwriter, what it was like to grow up with limb girdle muscular dystrophy, their creative process, and their play on BBC Sounds, Little Miss Burden.
Episode four: Alexa Wilding on caregiving, minor-major characters in your story and two cancer diagnoses in one family.
In this episode, Logan talks to Wilding, a writer, musician and mother of two, whose experience with cancer and caregiving has both built community and informed her creative life. They talk about what it’s like to be a caregiver and mum of twins, dubbed on her Instagram as #twinmagic, her own breast cancer experience, her writing practice, and what it means to reframe resilience.
Episode three: Charlie Fitz On Using Art to Reclaim the Medical Narrative + Ehlers-Danlos syndrome
In this episode, Logan talks to Charlie Fitz, a UK-based sick and disabled artist, writer, co-director of the remote artist studio TRIAD³ C.I.C and medical humanities postgraduate at Birkbeck, where she is a recipient of the Wellcome Trust studentship. Since becoming sick, Fitz has turned to her art practice as a meditative process, a form of disability activism, and as a means to understand and reclaim her experiences of illness and trauma. In today’s episode, Fitz talks about her experience with Ehlers-Danlos syndrome, her time in hospital, having to outsource care and fundraise for surgery, mental health, interdependence, and collective care.
Content warning: this episode mentions death and suicide. If you or a loved one is experiencing suicidal ideation or needs support, please reach out.
UK: Samaritans: call 116 123 for free
National Suicide Prevention Helpline: call 0800 689 5652
USA: The National Suicide Prevention Lifeline: call 988
Episode two: Tonya Ingram on ‘Navigating the Organ Donor System, Poetry + Lupus’
In this episode, Logan talks to Tonya Ingram, a poet and mental health advocate living with lupus, about her experience of being on the kidney transplant waiting list, and the darker side of the organ transplant process and organ procurement organisations. They also discuss her poetry practice and choosing to blossom, despite the conditions of the soil.
To read a transcription of episode two, click here. All episodes are also available on solifewantsyoudead.com
Episode one: Nora’s Story: Reimagining Dreams, Liver Transplant and the ‘Why’ of So, Life Wants You Dead; interviewed by Christine Cestaro.
In this episode, Logan talks to her friend and former colleague Christine Cestaro about why she wanted to start So, Life Wants You Dead. They also discuss how her illness came to light, what happened when she went into liver failure, the power of community, and what this show is all about
To read a transcription of episode one, click here. All episodes are also available on solifewantsyoudead.com